“People should control their digital identity”: Barcelona’s chief technology officer on the DECODE Project

Barcelona in 2010. God I wish I was in Barcelona. Image: Getty.

Barcelona’s chief technology officer on the city’s involvement in the DECODE Project.

Today, citizens have little say in how their data is gathered or used. It’s no secret that large technology companies mediate most of our online and offline activities, collecting huge quantities of personal data, and keeping it under lock and key: Google does this with search and email, Amazon with shopping, Facebook with social networking. In addition to eroding our privacy and autonomy, this monopolisation of data also creates troubling economic inequalities.

Giving citizens the opportunity to proactively use their data to improve their lives and communities should be a hallmark of a fair and just digital society. Yet, too often, citizens are treated as passive producers and consumers of data, effectively disempowering them. 

We believe that people should control what happens to their digital identity, who uses their data and for what purposes. DECODE – DEcentralised Citizens Owned Data Ecosystem – is an experimental project to develop practical tools to protect people’s data and digital sovereignty.

The project is building towards a data-centric digital economy where citizen data, generated by the Internet of Things (IoT) and sensor networks, is available for broader communal use, with appropriate privacy protections. As a result, innovators, startups, NGOs, cooperatives, and local communities will be able to use that data to build apps and services that better respond to individual and community needs.

Today’s digital economy treats data as a commodity to be traded in secondary markets – a development made possible through ubiquitous and permanent surveillance facilitated by big technology firms. A recent study by the London School of Economics for the European Parliament argues that centralising computing, data storage and data-driven service provision in the hands of a few players weakens the innovation ecosystem, favouring the incumbents and erecting new, unsurpassable barriers to entry. In time, it constrains user-driven innovations, particularly those oriented towards social impact without a strong monetary component.

Furthermore, as AI and machine learning continue to shape the future – consider the likely impact of the driverless cars on our cities or precision agriculture on the environment, or deep learning in the healthcare sector – there’s no getting away from the fact that we badly need a democratic means of controlling the platforms and data that will be used.

Fortunately, the current paradigm is not the only solution. We believe that, once the appropriate privacy protections are in place, this abundance of data could benefit all of us, not just big companies.


The solution

So, how do we take advantage of the best that is offered to us by digital technologies while rejecting the worst – whether that be the highly precarious nature of work, or the penchant for rampant property speculation that have become the hallmarks of many digital platforms.

First and foremost, the thorny questions around the ownership, control and management of personal data, preemptively decided by big tech firms on everyone’s behalf, must be addressed. The premise of DECODE is that the data we create on the internet, through mobile phones and other personal devices, has enormous value. This data belongs to us.

Recent news stories build an even stronger case for this narrative to change and for projects like DECODE to be brought to life. Take for example how reports in the Guardian have unveiled the role that personal data played in influencing voters in the Brexit referendum and during political elections. Meanwhile, cyber-attacks, hacks and surveillance scandals are seemingly endless.

DECODE is an experiment in how cities and municipalities – Barcelona and Amsterdam are two key project partners – can help resolve those dilemmas of the digital society that are not yet handled by nation states. DECODE is to make a strong contribution to the ethos of democratic, digital urbanism – underpinned by encrypted and decentralised technologies for data management – that is emerging in many cities across the globe.

One reason why cities have failed to foster local alternatives to dominant internet services such as Uber or Airbnb is because of the lack of access to relevant data. In the cities of Barcelona and Amsterdam, DECODE will pilot local data platforms to change this. The platforms will operate on a different economic logic, promoting solidarity, social cooperation, as well as citizens and workers’ rights.

This logic is embedded in the tools, which combine blockchain technology with attribute-based cryptography. The decision of whether to share data (and on what terms) will be made by citizens taking part in the pilots in an informed and secure way. We also develop a new system of data rights and entitlements to facilitate the ownership and sharing of information.

Barcelona and Amsterdam have a long history of empowering citizens with digital technologies. Earlier this year, Barcelona launched the Barcelona Digital City Roadmap: towards technological sovereignty, which encourages citizens to have an active voice in decisions that affect them, including data ownership. In 2014, a project called D-CENT was piloted in the city; it improved participatory democracy and was used by two influential political groups. Now Barcelona uses a digital democracy platform called Decidim Barcelona to involve citizens in key policy decisions and actions, from urban planning to culture, tourism and mobility.

We believe that only a “New Deal on Data” can help us make the most of our digital technologies, while guaranteeing data sovereignty, data protection and privacy. Thus, a transition to a more inclusive digital economy can only be possible if we succeed in building new distributed infrastructures to share data, create encryption technologies for the people, and experiment with new data ownership regimes.

If you’d like to know more about DECODE and take part in the city pilots, please visit our website decodeproject.eu, follow us on Twitter @decodeproject.

Francesca Bria is DECODE Project Lead and Chief Technology and Digital Innovation Officer at Barcelona City Council.

 
 
 
 

What’s killing northerners?

The Angel of the North. Image: Getty.

There is a stark disparity in wealth and health between people in the north and south of England, commonly referred to as England’s “north-south divide”. The causes of this inequality are complex; it’s influenced by the environment, jobs, migration and lifestyle factors – as well as the long-term political power imbalances, which have concentrated resources and investment in the south, especially in and around London.

Life expectancy is also lower in the north, mainly because the region is more deprived. But new analysis of national mortality data highlights a shockingly large mortality gap between young adults, aged 25 to 44, living in the north and south of England. This gap first emerged in the late 1990s, and seems to have been growing ever since.

In 1995, there were 2% more deaths among northerners aged 25 to 34 than southerners (in other words, 2% “excess mortality”). But by 2015, northerners in this age group were 29% more likely to die than their southern counterparts. Likewise, in the 35 to 44 age group, there was 3% difference in mortality between northerners and southerners in 1995. But by 2015, there were 49% more deaths among northerners than southerners in this age group.

Excess mortality in the north compared with south of England by age groups, from 1965 to 2015. Follow the lines to see that people born around 1980 are the ones most affected around 2015.

While mortality increased among northerners aged 25 to 34, and plateaued among 35 to 44-year-olds, southern mortality mainly declined across both age groups. Overall, between 2014 and 2016, northerners aged 25 to 44 were 41% more likely to die than southerners in the same age group. In real terms, this means that between 2014 and 2016, 1,881 more women and 3,530 more men aged between 25 and 44 years died in the north, than in the south.

What’s killing northerners?

To understand what’s driving this mortality gap among young adults, our team of researchers looked at the causes of death from 2014 to 2016, and sorted them into eight groups: accidents, alcohol related, cardiovascular related (heart conditions, diabetes, obesity and so on), suicide, drug related, breast cancer, other cancers and other causes.

Controlling for the age and sex of the population in the north and the south, we found that it was mostly the deaths of northern men contributing to the difference in mortality – and these deaths were caused mainly by cardiovascular conditions, alcohol and drug misuse. Accidents (for men) and cancer (for women) also played important roles.

From 2014 to 2016, northerners were 47% more likely to die for cardiovascular reasons, 109% for alcohol misuse and 60% for drug misuse, across both men and women aged 25 to 44 years old. Although the national rate of death from cardiovascular reasons has dropped since 1981, the longstanding gap between north and south remains.

Death and deprivation

The gap in life expectancy between north and south is usually put down to socioeconomic deprivation. We considered further data for 2016, to find out if this held true for deaths among young people. We found that, while two thirds of the gap were explained by the fact that people lived in deprived areas, the remaining one third could be caused by some unmeasured form of deprivation, or by differences in culture, infrastructure, migration or extreme weather.

Mortality for people aged 25 to 44 years in 2016, at small area geographical level for the whole of England.

Northern men faced a higher risk of dying young than northern women – partly because overall mortality rates are higher for men than for women, pretty much at every age, but also because men tend to be more susceptible to socioeconomic pressures. Although anachronistic, the expectation to have a job and be able to sustain a family weighs more on men. Accidents, alcohol misuse, drug misuse and suicide are all strongly associated with low socioeconomic status.

Suicide risk is twice as high among the most deprived men, compared to the most affluent. Suicide risk has also been associated with unemployment, and substantial increases in suicide have been observed during periods of recession – especially among men. Further evidence tells us that unskilled men between ages 25 and 39 are between ten and 20 times more likely to die from alcohol-related causes, compared to professionals.

Alcohol underpins the steep increase in liver cirrhosis deaths in Britain from the 1990s – which is when the north-south divide in mortality between people aged 25 to 44 also started to emerge. Previous research has shown that men in this age group, who live in the most deprived areas, are five times more likely to die from alcohol-related diseases than those in the most affluent areas. For women in deprived areas, the risk is four times greater.


It’s also widely known that mortality rates for cancer are higher in more deprived areas, and people have worse survival rates in places where smoking and alcohol abuse is more prevalent. Heroin and crack cocaine addiction and deaths from drug overdoses are also strongly associated with deprivation.

The greater number of deaths from accidents in the north should be considered in the context of transport infrastructure investment, which is heavily skewed towards the south – especially London, which enjoys the lowest mortality in the country. What’s more, if reliable and affordable public transport is not available, people will drive more and expose themselves to higher risk of an accident.

Deaths for young adults in the north of England have been increasing compared to those in the south since the late 1990s, creating new health divides between England’s regions. It seems that persistent social, economic and health inequalities are responsible for a growing trend of psychological distress, despair and risk taking among young northerners. Without major changes, the extreme concentration of power, wealth and opportunity in the south will continue to damage people’s health, and worsen the north-south divide.

The Conversation

Evangelos Kontopantelis, Professor in Data Science and Health Services Research, University of Manchester

This article is republished from The Conversation under a Creative Commons license. Read the original article.